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Reflections on Three Decades in the Movement

A Bolt from the Blue

I was hosting a public affairs show on WBAI Radio in New York City, called Walden’s Pond, that covered current topics like health and politics. We often featured live guests. The show’s producer suggested a segment on circumcision and sent me a packet of information.

Something about it triggered me. I had always felt that my genitals were not normal, and for the first time I noticed the emotions I’d been carrying below the surface. I needed time to process what I was reading. It was a full year before I felt ready to schedule my first interview on the topic.

I was so moved by my conversation with Marilyn Milos, a pioneer in the movement and founder of NOCIRC, that I sat alone in a room for a few hours afterwards, feeling as if someone had died. The full scope of what happened to me as a baby hit hard: My body had been violated. Something had been taken from me without my consent.

 

My Intactivism Begins

That was the first of what would be many shows on circumcision, with guests from academia and medicine. I started attending the conferences where, NOCIRC founder Marilyn Milos was pulling together provocative thinkers, researchers and activists. Much of the discussions debunked assumptions underlying what was still a largely unquestioned routine medical procedure.

Back at the station, my guests and I shared these findings with my audience. We wanted to help educate listeners and set a positive, intelligent tone. It didn’t make me popular with coworkers and station supporters — far from it. I had difficult conversations and lost some friends. Some tried to have my show canceled.

As my understanding grew, the anti-circumcision movement was expanding too. In the 1990s, the nightly news on television was the most coveted exposure, and the movement had some moments in the spotlight on the major networks. Since then, spreading the message has come a long way with social media; today there are many more outlets for our message, some targeted to specific demographic groups or activists from other causes such as new parents, human rights, nurses, LGBTQ groups, and others. It’s exciting to see how far we’ve come as Intact America embraces digital tools and tests new messaging. A new generation of intactivists is stepping up and speaking out.

 

The Fight Continues

One thing hasn’t changed, though: We still encounter ignorance. Our society is woefully uneducated because the foreskin has been practically erased — barely discussed in medical school and invisible in popular culture, even including mainstream, readily-accessible pornography. In some ways, the battle is even harder now: We have to be even louder than ever to be heard.

A lack of awareness of the sexual and health benefits of having a foreskin is one thing — but a lack of concern in light of the facts is another. It’s good news that the infant circumcision rate is on a downward trend, but U.S. culture continues to buy the lie that it is good medical practice, even though it has been debunked over and over. Meanwhile, men who were babies when I started on this journey suffer in silence.

 

The Future of the Movement

The years ahead will bring more compassion to those hurting. Intact America is addressing this critical need with its new group therapy program, where men can talk through the issue without judgment, and by taking our issue to new demographics in the Skin in the Game campaign. As advocating for the foreskin becomes normalized, we will see a shift.

The other part of future success lies in education. I’ve always felt that we need a basic 101 on genital anatomy. The foreskin is a protective covering for the glans, guarding sensitivity and heightening pleasure. We need more medical educators who can explain this in a relatable way, along with the growing chorus of social media influencers who are educating and speaking out against it.

While my three-decade journey as an intactivist has had its challenges, at the same time it has taught me so much. One of the biggest gains has been a sense of agency over my own body. In recent years this has made me a stronger advocate for myself with regard to health problems I have faced. Instead of accepting a doctor’s recommendation without question, I have the confidence to seek second opinions and make decisions for what’s best for my own body. I’m a better-informed consumer of medical information.

Coming to terms with my own experience made me a more thoughtful person about sexual issues, about relationships, and about society as a whole. I lost some friends along the way, but at the same time I gained so much. What I have learned and am still learning is priceless. I wouldn’t change a thing. I hope that every activist is able to feel, as I do, that that they’re making a difference.

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Marilyn

Marilyn Fayre Milos, multiple award winner for her humanitarian work to end routine infant circumcision in the United States and advocating for the rights of infants and children to genital autonomy, has written a warm and compelling memoir of her path to becoming “the founding mother of the intactivist movement.” Needing to support her family as a single mother in the early sixties, Milos taught banjo—having learned to play from Jerry Garcia (later of The Grateful Dead)—and worked as an assistant to comedian and social critic Lenny Bruce, typing out the content of his shows and transcribing court proceedings of his trials for obscenity. After Lenny’s death, she found her voice as an activist as part of the counterculture revolution, living in Haight Ashbury in San Francisco during the 1967 Summer of Love, and honed her organizational skills by creating an alternative education open classroom (still operating) in Marin County. 

After witnessing the pain and trauma of the circumcision of a newborn baby boy when she was a nursing student at Marin College, Milos learned everything she could about why infants were subjected to such brutal surgery. The more she read and discovered, the more convinced she became that circumcision had no medical benefits. As a nurse on the obstetrical unit at Marin General Hospital, she committed to making sure parents understood what circumcision entailed before signing a consent form. Considered an agitator and forced to resign in 1985, she co-founded NOCIRC (National Organization of Circumcision Information Resource Centers) and began organizing international symposia on circumcision, genital autonomy, and human rights. Milos edited and published the proceedings from the above-mentioned symposia and has written numerous articles in her quest to end circumcision and protect children’s bodily integrity. She currently serves on the board of directors of Intact America.

Georganne

Georganne Chapin is a healthcare expert, attorney, social justice advocate, and founding executive director of Intact America, the nation’s most influential organization opposing the U.S. medical industry’s penchant for surgically altering the genitals of male children (“circumcision”). Under her leadership, Intact America has definitively documented tactics used by U.S. doctors and healthcare facilities to pathologize the male foreskin, pressure parents into circumcising their sons, and forcibly retract the foreskins of intact boys, creating potentially lifelong, iatrogenic harm. 

Chapin holds a BA in Anthropology from Barnard College, and a Master’s degree in Sociomedical Sciences from Columbia University. For 25 years, she served as president and chief executive officer of Hudson Health Plan, a nonprofit Medicaid insurer in New York’s Hudson Valley. Mid-career, she enrolled in an evening law program, where she explored the legal and ethical issues underlying routine male circumcision, a subject that had interested her since witnessing the aftermath of the surgery conducted on her younger brother. She received her Juris Doctor degree from Pace University School of Law in 2003, and was subsequently admitted to the New York Bar. As an adjunct professor, she taught Bioethics and Medicaid and Disability Law at Pace, and Bioethics in Dominican College’s doctoral program for advanced practice nurses.

In 2004, Chapin founded the nonprofit Hudson Center for Health Equity and Quality, a company that designs software and provides consulting services designed to reduce administrative complexities, streamline and integrate data collection and reporting, and enhance access to care for those in need. In 2008, she co-founded Intact America.

Chapin has published many articles and op-ed essays, and has been interviewed on local, national and international television, radio and podcasts about ways the U.S. healthcare system prioritizes profits over people’s basic needs. She cites routine (nontherapeutic) infant circumcision as a prime example of a practice that wastes money and harms boys and the men they will become. This Penis Business: A Memoir is her first book.